Legislation

HealthEngine

• HealthEngine sharing clients personal information with Lawyers.
• Q: Is this an Injury, and were you injured at work?
• If answered yes, would share data with Lawyers who deal with injury at work issues.
• Data breach.

Medicare

• Lets share 10% of data.
• Anonymized it. Not very well.
• Researchers were able to deanonymize the data.
• People copied it.
• Attempted to pass legalisation to make it illegal to deanonymize data. Not passed yet.

Red Cross blood service

• Service provider
• Accidentally put backup in public accessible website.

Data

• Data is the new Asbestos
• Do you really need this Data?
• Software keeps track of more and more data we don’t need.
• Asking for permission to share data is OK.
• Sharing data for advertising without permission not OK.
• Computer is not your friend. Computer does what it is told.
• Designed by humans. Humans are failable.

ABS: Australian Bureau of Statistics

• If we are going to put out data, and there are only 2 or 3 people in cell, they won’t do so, as risk exists that individuals can be identified.
• Strong legislation.

List of various other organisations